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After Five Years in Special Ed, My Child Is Still Behind
Ask the Experts: My fourth-grader has ADHD and dyslexia, and still reads at first-grade level. Is the system failing him?
Question: My oldest child has ADHD and dyslexia. He is in fourth grade and repeated first grade. He is behind in all of his
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classes, in reading the most. I had a meeting with one of his teachers last week and found out that he is still reading at a first-grade level. He has an IEP (Individual Education Plan) and is "labeled" as OHI (other health impaired). I have had many meetings with the school and have been dealing with this for five years. I feel as if he is falling through the system. I have tried everything I can think of to help him. If you know of anything that I might be able to do to help, please let me know.

Answer: The IEP is structured to prevent children from falling through the cracks. Depending on the severity of your child's impairments, an IEP meeting can be held once or twice a year, or more frequently if his teachers feel this is necessary. The IEP and his classification/diagnosis allows the IEP process to continue throughout his school years. Having the IEP is a wonderful resource for you to have in place, because it holds people accountable.

Unfortunately, some children don't get to this step soon enough. So, even if it doesn't feel like it to you, you've done a lot for him by getting him to qualify for the IEP.

Since you feel he is not making progress, I would take all the treatment plans and goals you signed at his IEP meeting IEPs and go over them to familiarize yourself with what was supposed to be accomplished and in what time frame. If you no longer have copies, the school should be able to provide them. Once you've examined the full scope of all his IEP goals, you can present your specific concerns to your principal. Ask what other services he is eligible for.

If you are still not satisfied, you can contact your school district's special education office and ask how you might file a grievance. Principals, teachers and special education personnel all have different ideas of how to interpret the laws of special education, which makes it difficult for parents to sort out. You may also want to go to the Web site of the National Center for Learning Disabilities. NCLD is an advocacy center for parents, students and educators to better understand how this system works. You are doing the right thing by advocating for your child and staying on top of it.

Debra Collins is a licensed marriage and family therapist. Debra has worked in both primary and middle schools as a school counselor. She gives workshops to teachers and students on a variety of topics concerning youth and families and offers parenting classes and parent coaching to parents throughout the Bay Area. Debra is also a mental health assessor for the San Francisco Unified School District.

Advice from our experts is not a substitute for medical or other professional advice and services from a qualified health-care provider familiar with your unique situation. We recommend consulting a qualified professional if you have concerns about your child's medical or emotional condition.

September 2006

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Comments From GreatSchools.net Users
01/2/2009:
"I have a child that was falling behind severely the older she got. After several evaluations done OUTSIDE of school, I found she has severe to profound dyslexia and cannot get past a first grade level. An orton-gillingham based education was recommended for her. I believe there are many children that cannot progress due to dyslexia and it is not identified accurately. Then these kids become behavior problems and the issues go on from there. I urge all parents/guardians with a lax child that can't get with it in school to get full evaluations by a qualified dyslexia expert and go from there. Your child will benefit."

09/18/2007:
"I have a step-son that has barely made it to 5th grade...thanks to summer school...but I have been in his life (full time) for a little over a year...so now is a transition time for him...I truly believe that he is dyslexic.....and most schools in North Carolina do not test for that... what do we do now?????"

11/16/2006:
"My thought is that perhaps this child is performing within his capabilities."

10/5/2006:
"I taught fourth grade for 28 years and had several slow readers during that time. I asked what they liked to read, not what they had to read. They like pictures with their words, so I recommended comic books, not violent, or scary ones, but ones that teach while being funny. Students related the words to the pictures and made it easier for them to read. This may not work for all, but it helped mine."

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